As was the baldness. It's not that I'm vain about my hair, quite the opposite in fact! But I knew that once the hair went, and eyebrows and eye lashes disappeared, combined with the grey face, then I would no longer be able to go around looking "normal"... Everyone would know I was sick. Everytime I would look in the mirror, I'd see it. Every photo. Every person I would meet. I couldn't bear the thoughts of people looking at me with pity on their faces. I'm a doctor, I'm "not meant" to be sick. I'm supposed to be the strong one. How would my parents and all my loved ones feel when they would see me "sick looking"? My mind was on overdrive all that night.
I know Fergus's mind was too. He is one of the kindest souls I know. If I am in pain, then he too feels it. So many times he said to me that he wished it was him going through it and not me. But I would never be able to cope with that! If he even gets a head cold I worry about him!
That morning, we got up, showered, put on comfortable clothes. We downloaded a few episodes of Frankie & Grace from Netflix to watch on the tablet and Fergus had bought a headphone splitter so we could both listen together. We had intentionally opted for a light hearted comedy to watch! We also made our minds up in the car on the way to the hospital that we were going to walk in there smiling. We started this journey smiling, we were going to finish it smiling.
I will never forget walking in that side door of out-patients and climbing up the one flight of stairs...a set of stairs that towards the end of my treatment were to feel more like Everest! We queued up along the corridor with lots of other patients. A lovely man from Connemara smiled and asked "first day yeah?". I smiled nervously. He told us that everyone there would be kind and to try not worry. He was right - the staff were exceptional! I was assigned Chrissie as my oncology nurse. An efficient young nurse with a great sense of humour, a big smile and kind eyes. She was also incredible with a needle - something I was to become increasingly glad of as time went on and my veins all collapsed! She took my bloods and told us to go out for a coffee for a while to wait for the results.
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Round 1 - still smiling! |
We went across the road to Mr Waffle and, despite not having an appetite, I finished a full plate of waffles, strawberries and fresh cream - along with the traditional cup of tea. I think I may have even finished some from Fergus's plate! When it was time, we walked back over. I was shown to a recliner chair in the 7 patient room. I was glad of the company. Chrissie said the bloods were fine and we were ready to start. There would be 2 different chemotherapies given intravenously; one, then a half hour break, then the second. It would be 6pm or after by the time we would be done. She went through the list of potential side effects paying particular attention to that of anaphylaxis. Apparently this is a regular occurence with one of the drugs they were giving me. They were so concerned, they had the adrenaline, IV steroids and antihistamines all ready to go.
What shocked me the most that day was the way the nurses dressed when they were preparing to administer the drug. They wore full length, full sleeve gowns and 2 pairs of gloves covering up the cuffs. The drugs are cytotoxic so the nursing staff cannot afford to get splashes of them on their skin.
The rest of the day was fairly uneventful thank God. Fergus was reluctant to leave my side but Fr Rob did manage to get him to go out for lunch with him for an hour. I met a lovely lady serving our lunches - Cathy. We were to become good friends and she always looked after me at lunch time!
By the time evening came, we were both exhausted. It was nearly 7pm when we got into the car to go home. I was delirious with tiredness and the drugs! I was so bad that as I spoke to mum on the phone to tell her how it all went, I also started telling Fergus to turn around and go back to the hospital as I'd forgot my phone!!! Obviously, this was not the case! Mum was cracking up laughing on the other end of the phone!
We got home, had a small bite to eat, and went to bed. For now, everything seemed to be going ok.